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WDD09, A Storm Called Ida, Community Outreach, & Guest Blogging~

World Diabetes Day is “officially” over, but not for anyone with or affected by Diabetes.

Diabetes is a never-ending fact of life in our world. Now, we have to continue to inform, educate, and continue the fight to find a cure!

This World Diabetes Day was a bit complicated for me. I had planned to meet Hannah and LeeAnn on World Diabetes Day In Philadelphia. My job was to assist Hannah in manning her booth (which was all about YOU- The Diabetes On-line community) but the area I grew up in was recovering from a N’Easter called Ida, and her damage was massive – especially in the state where I hail from, New Jersey.

I was in South Jersey during the storm and we lost power 6 times, roads flooded and are still out, shutters blew off my mom’s house, and the beach in some parts suffered severe erosion. Atlantic and Ocean counties lost miles of beach. Ida was ferocity was intense! The Governor of New Jersey has declared a Coastal Emergency – which may ease the cost of the damage-, which is in the tens of millions was out in the storm & have posted some pics of spots near and dear to my heart that suffered.

Normally this sign is in on the beach in front of the water- not in it.

Ventnor City Fishing Pier on Cambridge Ave Beach. Normally you see a beach and the ocean~

This is the step that meets the sand on Cornwall Ave beach...usually.

This is the beach at New Haven Ave in Ventnor, NJ. The Pier looking structure is actually a wheel chair ramp for the beach. Both suffered major damage

Saturday morning was spent assessing the damage to my mom’s property. I jumped in the car and made it to Philly by 12:45. By that time I’d missed the rush, but I did come baring blue cupcakes (from a food table) and tried to help anyway I could.

I handed out Hannah’s leaflets-, which were outstanding! Hannah wrote and collated multi-colored leaflets all about Diabetes bloggers, Diabetes social Networking sites 9and their handouts) and had laptops with the screens featuring anything and everything regarding the Diabetes ON-line Community!

I also participated in some Diabetes Art Therapy with LeeAnn – which was incredibly fun and therapeutic. Lee Ann had a dizzying array of Blue Circles, markers, papers, etc! It was a great day. Hannah & Lee Ann did the DOC proud!

National Diabetes month marches on and tomorrow I’ll be speaking about life with diabetes at a Community Outreach Program in South Jersey. I’m excited and looking forward to it! My goal is to bust some diabetes myths, teach a few realities, have the group bust a gut, and turn folks on to owning their diabetes! I’ll keep you posted on how it turns out!

This month I also was given a wonderful opportunity to be a Guest Blocker (OK- I need coffee - or at least a nap!) I mean Guest Blogger over at HealthCentral.com . I wrote about Diabetes Choices and by choices, I mean attitude- and by attitude I mean a good and the not so good! Click HERE and take a look!

Own it!!!!! - Post I made on FaceBook - see the link

Own it!!!!! - Post I made on FaceBook - see the link
http: //www.facebook.com/topic.php?topic=4389&post=16218&uid=2204471074#post16218

Own It! Own your diabetes, don't let it own u. Take your blood sugars, bolus when needed, count your carbs, and be done with it. It's normal for us to do that. Look, I know where your coming from. I was diagnosed at 8 ( the day b4 Halloween) and come from a family where 4 out of 8 immediate family members were type 1. In HS and college I didn't want to stand out, I wanted to be that dreaded word, NORMAL.
Everyone wants to be "normal", but everyone's "normal" is different. Normal for diabetics is taking Blood sugars. Normal for those who are allergic to peanuts, is to stay away from peanut butter - which would drive me nuts, and normal for die hard Packers fans is to paint their face and chest and sit in the freezing cold w/out a top on every home game, regardless of the temp. To me, that's not normal, that's insane. But for them, it's a normal Sunday during FB season!
Don't give up, get active, and own it. Work with the big D. I swear to u the minute u stop fighting and start working with it, everything gets easier.
Look, I watched my older sister Debbie - who was a diabetic - type 1, try so hard to be normal and deny that anything was wrong or "abnormal," that she died from complications at the age of 34. She suffered from Heart attacks, strokes, and in the end, kidney failure. She lost her job, many of her friends and it was in no way normal. It was a long, slow, painful process for the whole family. It broke my heart, and crushed my parents heart. You can do or be anything in this world. But being healthy really helps. It literally takes 5 seconds to take a blood sugar, and then it's done. do it 5 times and day and it's still only 25 seconds.
Do it 10 times a day , and it's only 50 seconds - but your still under a minute. You'll feel better, your numbers will get better, and your mom won't worry as much. I'm 30 something now and well past the age that my sister was when she died. I just wish she that she had accepted what "normal" was for her instead of trying to be like everyone else.
My sister drove me crazy - as many older siblings do, but I haven't heard her voice in 17 years and I miss her everyday. If I could change one thing in my past, (and trust me there ARE MANY THINGS THAT I'D CHANGE) it would be what my sister Debbie's view of what normal was as an adolescent.

We are what we eat (2)

We are what we eat (2)
'The Food Hospital' is a series of Channel 4 television programmes (8pm, Tuesday evenings). Last night's edition featured a young girl, a dancer, who suffered from Crohn's Disease. She was taking Steroids to control her condition, although it appears they were not doing so. In order to replace them, she was given a dietary programme, which she followed, with what appeared to be outstanding results.

The Channel 4 webpage is entitled 'Using food as medicine'. I mention it for three reasons.

First, to congratulate Channel 4 for having the audacity to transmit a programme that is mildly critical of ConMed drugs - not something that the mainstream media (and certainly not the BBC) does often.

Second, it highlights the growing realisation that there are better, safer, and more effective responses to disease that resorting to Big Pharma drugs, and that tiny pockets within the NHS are now prepared to recognise this (another example is the greater use of 'talking therapies' in the treatment of depression).

And third, the central importance of good diet to our health and well-being. We are, indeed, what we eat!

Although this series of blogs does not give dietary advice, it is going to focus on many issues concerned with what is wrong with the food and drink that we consume, or perhaps more accurately, the food and drink we are encouraged (by big food corporations) to consume. Indeed, the concept of the 'Big Food' industry is going to be central to many of the arguments used here.

Big Food 'adds value' to food by processing it.

But the 'value' added to our food is a monetary rather than dietary concept. Food, taken from the ground, and consumed in its (almost) natural form, is usually inexpensive, and good for our health, our well-being, and our energy levels. The more that food is processed the more expensive it becomes - and the less value it is to us, and the way we function.

Take, for example, this article about the chicken we eat - especially from 'fast food' outlets, such as McDonalds. This is not fresh chicken, taken from the field, and cooked. As the article states, the 'chicken' is only 50% of what you are eating. You are also eating foaming agents, and preservatives - not there to assist your health, but to enhance profit. As the author states, not many people realise what they are eating. It is called chicken - so we believe it to be chicken.

Or this article about Pringles Potato chips. Made from potatoes. Well, no - actually they are made from a slurry of rice, wheat, corn and potato flakes that are then pressed into shape, cooked. An enjoyable, harmless snack? Well, no - as the author explains, rather than eating something we consider good and wholesome, the production process actually creates Acrylamide, a substances known to be carcinogenic.


Over the coming weeks and months, we will examine more about food, how Big Food produces it, processes it, and profit from it, often at the expense of our health.



Michael Jackson - death by drugs

Michael Jackson - death by drugs
Michael Jackson died of a drugs overdose. His personal doctor, Conrad Murray, has been convicted of manslaughter. It is a tragic case. The death of a man revered by many. And the conviction of a conventional doctor for failing to care for him properly.

Yet it was a tragedy waiting to happen, and which probably happens many thousand times each year, is less well-publicised circumstances.

On the one hand, we have a man who believes that his problems can be solved by conventional medical (ConMed) drugs, and as he takes more of them, demands more.

On the other hand, we have a ConMed doctor who also believes that pharmaceutical drugs are helpful, and that his training enables him to control their side-effects - or, as I prefer to call them - disease-inducing-effects, or DIEs.

So develops a situation where the patient is giving a cocktail of drugs, including Propofal, Loracepam, Medazalin and Valium - and he dies. All because he wanted to sleep.

Did Jackson know the possible consequences? Did Murray tell him? Or were they both playing with fire?

What we have to remember is that Big Pharma drugs are now the biggest single killer in the USA. So this incident, high-profile as it has been, is not alone.

Champix (Chantix) - a drug worth banning?

Champix (Chantix) - a drug worth banning?
Champix (or Chantix in the USA) is an anti-smoking drug manufactured by Pfizer. It is causing havoc with people's lives through its quite dreadful disease-inducing-effects (DIEs).

And now the Health Sciences Institute is asking the question - should it be banned?

According to the HSI newsletter, the response of the drug company, and the drug regulators, are the usual ones:
* that the risks are outweighed by the benefits.
* that all drugs have 'side-effects'.
* with this drug, it is being claimed that the 'side-effects' are just the withdrawal symptoms from smoking.

So, of course, the drug will not be banned, or withdrawn - not yet, anyway. It will continue to be prescribed to people who want to stop smoking, quite regardless of the evidence against it. HSI claim that over 1 million people within the UK have been prescribed the drug. This has been the history of Big Pharma drugs over the decades; a wonder drug is introduced; so it is found to have serious DIEs; but those DIEs are denied or discounted; eventually the denials are no longer viable so the drug is withdrawn or banned - often many years, even decades after it's introduction.

The 'side-effects' listed on the package insert include nausea, constipation, gas, vomiting, and 'changes in dreaming'. But, as usual, this is only part of the pictrure, and there are many more DIEs that are not listed - including diarrhoea, gingivitis, chest pain, back pain, dizziness, anxiety, depress, emotional disorder, polyuria, menstrual disorder, and hypertension

The HSI article includes the comments on the DIEs Champix (or Chantix) users, and these make worrying reading - and demonstrate just how Big Pharma drugs can change people's lives, and lead to serious damage to their health. Can I suggest you go to their website, and whilst there, sign up for their consistently interesting newsletters. Clearly, the DIEs mentioned are a matter for serious concern - and are much more dangerous to health than smoking. And I say this without wanting to imply that smoking is a good thing!

The 'cure' is clearly worse than the 'disease' in purports to cure.

And there are much safer, more effective treatments to help people stop smoking that this drug.

The Failure of Conventional Medicine.

The Onion Blows Their Chance To Make Things Right

The Onion Blows Their Chance To Make Things Right

So Anne Finn, PR Manager for The Onion kept her word, and did respond to my friend Michelle Alswager’s request of helping to sponsor Jessepalooza. I’ll let you read the following and then you can tell me what you think.


On Wed, Nov 10, 2010 at 1:01 PM, Michelle Alswager wrote:


Hi, Anne. Kelly Kunik asked that I forward this email to you. I agree with you that all of your articles are in good fun - this one struck a cord with many of us. Especially so soon after the death of many children due to diabetes as of late - it’s been all over the news, apparently you missed it. One of the deaths was my son. Who loved your newspaper. Please read below - I think it really would go a long way if you got involved in our event.


Thanks,


Michelle


Forwarded email sent:


Date: Sun, Nov 7, 2010 at 3:52 PM


Subject: Story on children with diabetes dying


To: chicago@theonion.com, madison@theonion.com


Hello. I'm not writing to you to attack you on the story you recently did poking fun at Jay Cutler and by doing so, throwing kids under the bus who have type 1 diabetes. To be honest, my son Jesse LOVED the Onion. He read it all the time and commented on it. Nothing offended him. In fact, I'm not sure this article would offend him - but I can't ask him - because he died on 2/3/10 from type 1 diabetes.


I know you are supposed to be funny - I get it. But there is a very loud community out there letting you have it on facebook & on blogs. While I understand you didn't mean to personally offend such a large community, I agree that making jokes about kids dying is never funny.


I have a suggestion - you can take it or leave it I guess, but I think you could make a big difference in our community by donating to something very personal to many people. Since my son died in February (Jesse Alswager) my family and friends - and complete strangers - have done a lot in his memory. And I am sad to say there are many more kids dying as teens right now with a newly identified "Dead In Bed" Syndrome. Nothing funny about that. Parents are scared. My family has always been a lot of fun and we stay positive. In Jesse' honor each year we hold something called "Jessepalooza". You can see what it was all about last year at www.jessepalooza.org. This year - in 2015- we have added a new component by adding a 30, 60 and 100K metric century cycling event.


If you would consider sponsoring the event on some level, it might calm the community. It’s just an idea to show that you did it in fun, and that a mom who recently lost her son is willing to shake it off.


Thanks for reading,


Best,


Michelle Page-Alswager


Here’s the response Michelle got back:


Hi Michelle,


I'm sorry for the loss of your son. While a sponsorship to "Jessepalooza" will not be possible, if you ever decide to host an auction, we would be happy to donate an item to help raise awareness and funds for research and treatment.


Thank you for all the good work that you do,


Anne



After receiving the email exchange in my inbox, all I kept thinking was: REALLY? "I'm sorry for the loss of your son? But we can’t sponsor Jessepalooza in anyway shape, or form? Bite me!" FYI: The auction item she refers to is a signed book from The Onion Staff. Which most likely would have been sign by the idiot who wrote the offending post in the first place!


DISGUSTING.


To The Onion staff, you had such a great opportunity to make things right and really help a wonderful cause and make things right.


But instead, YOU BLEW IT!


PS: If you'd like to tell Anne Finn how your feel, feel free to email her at: afinn@theonion.com