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Diabetes BITCHSwitch: Wendell Revisited.

Diabetes BITCHSwitch: Wendell Revisited.
After the Diabetes BitchSwich was turned up to 11 last week, thanks to Wendell Fowler's horrific diabetes article in the Southside Times, many in the Diabetes On-Line community waited to read Wendell's response.
Rumor had it (according to the Publisher, Roger Huntzinger) that Wendell might apologize.

Here's the thing, I actually spoke with the Roger on Wednesday, (who sounds like he drinks the Fowler Kool-aide in massive doses) and I wasn't holding my breath.
Especially when I was told by the Roger that we read Wendell's article wrong! Because you know us DOCers, we don't no nothing about "the betes!"
So.... Wendell's apology is up and running at the Southside Times. Click HERE, to read it.

I have to be honest guys, I had to marinate on it for a while before I could comment because I had to let his words really sink in. Anyway, here's my response/thoughts on his apology.
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Wendell -
I could absolutely start my letter to you by expressing my shear disappointment and disgust regarding your so called apology.
And then I’d continue and say that your apology is the worst apology I’ve ever heard in my life!
As a matter of fact, it wasn’t an apology in the least - It was another diabetes blame game, excuse filled rant of man who refuses to admit when he’s wrong.
I could follow that by saying: Wendell, how the hell can more than 40 commenters ( plus the thousands who facebooked, tweeted, and commented on blogs re: your heinous words) all be wrong?
I might even throw in the whole “last I checked, you couldn’t walk on water,” line, so I absolutely know that you are indeed capable of making mistakes.
Then I’d quote Kimberly Johnson and say: “Never ruin an apology with an excuse.”
In your case, your apology was just a rant of excuses as to why your words were so misunderstood by the masses.
Sorry Wendell, we're not buying it!
Speaking of apologies, I’d then go on to ask (actually, I should have asked you this first place and I was wrong not to do so in the first place - And I ADMIT IT) if you ever formally apologized to the Diabetes Youth Foundation of Indiana, it's Director, volunteers, and beneficiaries that you berated, belittled, and who’s gallant efforts to raise money for programs for children with diabetes you mocked.
if you haven’t - Shame on you - You need to do it, NOW.
And if they ask you to crawl through glass on your knees & apologize, do it, because no diabetes organization, or people associated with said diabetes organization should be written about in such a horrible way.
And then I’d bring up that bull crap article regarding the Diabetes War.
News Flash: I and many others do not believe there is a war between type 1 and Type 2. However, regardless of the type, we do believe that the “war” is against those in the media (like yourself, though I don’t consider you a journalist at all) who never get the diabetes facts right.
Instead, they continue to perpetuate diabetes myths.

Here’s the thing, I don’t want to go to war with my diabetes family - But I will fight tooth and nail to stop folks like you from preaching about my disease.
FYI, my 115 pound mother was diagnosed with type 2, two years ago. Guess she blows your type 2 theory.
Then I’d more than likely say that the whole “common ground” of which you speak is just not possible, because you refuse to really take the time to learn ALL the facts about ALL the types of diabetes.
And honestly, how can we meet on common ground when you think you’re better then everyone else?
I could say all of the above, because it’s all true.
And then I’d tell you that the Diabetes On-line community will continue to police what you say when you talk about our disease.
We will continue to write, tweet, blog, facebook, etc., whenever we see fit to call foul on your diabetes words.
That is our right and our passion as a people who live with the disease that you try to stigmatize and associate with shame.
We are not a lynch mob or hackers, quite the contrary. We are good people who live a diabetes life 24 X 7, 365 days a year with no time off for vacations or good behavior.
Our diabetes is with us first thing in the morning when we wake up, and it never rests even when we try to.
We bring our disease with us to work; weddings, vacations, funerals, college, ice cream socials, the mall, first dates, to the beach and absolutely everything in between.
We have earned the right to call you out on your words, especially because your words or not only untrue, they are downright dangerous.
Kelly Kunik - Type 1 for 33 years

Guys, I really hope if you haven't already, you'll go on over and let Wendell know what you think!

Also, here's link to the Editor's letter - It's a beaut!

Cortisone's A Bitch.....And So Am I

Cortisone's A Bitch.....And So Am I
Cortisone is a BITCH, pure and simple.

Especially when injected into a joint of a diabetic.

OUCH!
ON EVERY LEVEL.

Yesterday morning, I sat on gurney in a darkened room, with an audience consisting of a Radiologist, a nurse, and three attending physicians, (including one from China,) all crowded around an ultrasound watching as the image of my foot went from a grayish hue to reddish orange.

The Radiologist showed me (and my audience,) exactly where my foot was inflamed on the ultrasound, and I knew what was coming next. The one thing that I’d tried so hard to avoid these past 8 months was about to become a reality. Damn Metasalgia! He turned on the lights and started to speak.

Radiologist:“You have severe inflammation of the foot, second metatarsal & ligament. First, I'm going to numb you with lydacane, and then inject you with cortisone in the exact area that’s inflamed. Oh GOODY, I think to myself. I'm going to mark your foot exactly where the injection goes, because we need to be precise as possible, especially when it comes to the metatarsal area.

Now Kelly, are you aware that cortisone can cause elevated blood sugars for the next 7 to 21 days? I also need to make you aware of infections that can occur. Your a diabetic and this is your foot.”

Me: “Yes, I know all about the elevated blood sugars caused by cortisone and I’m totally aware of infection and foot issues for diabetics.”

Radiologist: Before I give you the shot, I need to know how you’ll handle your blood sugars.”

Me: “I’ll test often and keep in contact with my CDE.”

Radiologist: Great. Any sign of infection, I need you to go to a Dr. ASAP.

Me: “No problem. So will this fix me? If it doesn’t work, what’s next? When can I start aerobic activity and resume my longs walks? When can I wear pretty shoes again? When will everything be back to the way it was?”

Radiologist: You need to stay off your foot for a few days, ice it, elevate it, and take Tylenol for the pain. No aspirin for 24 hours. You can’t walk or run a marathon just yet Kelly. You’ll need to ease back into that type of activity, but not for at least 3 weeks, and then, start slow. It takes the cortisone a good 4 to 7 days to actually reduce the inflammation and your foot is really going to hurt for the next week or so.”

Me: “OK, I just want to get better. I take it that strappy peep toed wedges are still off limits until then?”

He didn’t answer me.

He dimmed the lights again and showed my inflamed area on the ultrasound to the audience of attendings. The shot and the pressure of the lydacane and then the cortisone being injected into my joint brought tears to my eyes. I tensed up and tried to be brave.
I continued to breathe deep and waited for it to be over.


When I looked up, one of the attendings, a woman near my age, who had asked me about the insulin pump and my experience with diabetes, looked right into my eyes and told me it would be OK. “Your going to do your 10 mile walks again Kelly.” At that moment, I really needed to hear that.

Thanks," I said and smiled.

I took my blood sugar (139) and increased my basal rate before I left the office.
By the time I drove home, my Blood Sugar was 63. I treated and watched it creep up every hour and adjusted the basal accordingly.

When the lydacane wore off, I could barely apply pressure to my foot, it hurt me more than words can describe. Basically, it felt like I’d stepped on a butter knife, continued walking on said knife, while traipsing over hot coals. I could tell I was in for a long evening of testing, icing, and elevating,
Which I did - religiously. I live on my own, no one to help or watch me. I need to be able to handle this if I want to continue to live an independent life.

By the end of the day, my Basal rate was up to 4.25 units an hour. Normally, my basal rate is between 1 and 1.15 units an hour. My blood sugar was around 199 at 9 p.m, and I raised my basal again to 4.5 units. I woke up with a low of 66 at 6 a.m.

Yesterdays total insulin intake 58 units.
Today’s insulin tally so far: 60.

Normally, my daily insulin total in a 24 hour period is somewhere between 30 and 39 units.

My highest cortisone blood sugar was 245 and my median cortisone blood sugar was 186.Not great, but not terrible, as far as cortisone and it’s diabetes issues are concerned.

When I had trigger finger two and a half years ago and received cortisone, no one at the Dr’s office bothered to tell me that steroids cause severe spikes in blood sugar.
I had to learn the hard way, by blowing close to a 500 BS when I got back home. Which resulted in several infusion set replacements, almost throwing out a new bottle of insulin, and an emergency call to my CDE, who set things straight. I also called the hand surgeons office and threatened to sue, if they didn’t immediately create a document that warned all diabetic patients of cortisones effect on blood sugars, which of course, they did….But I digress...That’s another story for another post.


Back to the whole inflamed foot thing. When I tested at breakfast this morning I was 115.
And At lunch I was 68. I treated and have started to decrease my basal rate, ever so slowly.

The foot feels a bit better, certainly not as tender to pressure as it was last night.
It no longer feels like I’m walking on a knife plunged into my foot while walking over hot coals. THANK GOD.

I’m still monitoring like a hawk stalking prey and I’ve gone through almost two containers of test strips so far.

Tomorrow evening I go to my acupuncturist for the pain. I’ve been going for a month and have seen a huge difference in the pain caused from Metatarsalgia, I wish I had started seeing her sooner.

Diabetes complicates things, but it doesn’t mean that it will win. My Metatarsalgia was not caused by diabetes, (it was actually caused by my love of walking long distances and a nasty toe brake two years ago) but the diabetes certainly didn’t help matters.

Still, the whole thing is teaching me patience on every level, and is reinforcing me to be an active patient in my recovery.

Today, I sit at home working, with my foot elevated and my ice pack near by.
I’m visualizing my first 3 mile walk on Kelly drive, and my first 5 mile walk on the Ventnor /Atlantic City boardwalk. The sun is shining on my face, the wind is blowing my hair, and I’m walking to the beat of my own drum. I can smell the ocean and I smile just thinking about it. I’m also dreaming about strappy wedge heeled, peep toed shoes with my toenails painted red.
I'm looking good and feel great! "FEET DON"T FAIL ME NOW!"

I plan on making the above paragraph a reality in the very near future.


Cortisone may be a bitch, so is Diabetes & Metatarsalgia for that matter. BUT, I got news for you Cortisone; Diabetes, and blasted Metatarsalgia, SO AM I !

Guest Host/Post From Ophir - Thriving With Diabetes

Guest Host/Post From Ophir - Thriving With Diabetes
Today's guest Host/Blogger is Ophir from The Conscious Diabetic. OK, true story, Ophir and I actually grew up in the same small beach town in South Jersey, but never knew one another - turns out we new a lot of the same people though. A few months ago we connected via diabetes blogging and a mutual friend.

A few weeks ago we actually met face to face at our friend's house - post on that d-meet to follow soon.

Anyway, I like to say it took two NJ hometown girls with diabetes to start blogging and become friends with Lori A to become aware that the other existed! Enjoy Ophir's post, and if you haven't visited her blog The Conscious Diabetic - YOU NEED TO!

I woke up with a 234 blood sugar reading today. I know why. My husband and I went out to dinner last night, a spontaneous date inspired more by laziness than romance. We sat and ordered our meal: For me, gluten-free Singapore rice noodles with chicken and veggies at P.F. Chang’s. I bolused insulin to compensate for the meal. But not a long-acting dual wave bolus, as the little voice inside of me told me to do.
A nice long dual wave filled with lustrous Humalog probably would have done the trick of offsetting the sugars released in a fatty meal. But I didn’t do that. I thought about it. But when the time came, when the opportunity arose, I didn’t hit those extra buttons on my insulin pump. I have been a Type 1 diabetic for over 35 years, have been to tons of doctors, nurses, and diabetes educators, and I keep up with all of the latest and greatest technologies and studies. And so, a high that results from a “I knew better” can be a bit exacerbating. I do know better. And typically after a “I know better” high blood sugar, I feel guilty.
Not today though, and I’ll tell you why: I’ve chosen to focus on self-growth instead of on what I did or didn’t do. I’m going to figure out why I didn’t set a dual wave when I know I should. What happened in that subconscious instant when I made that choice not to do what’s best for me and my health?
I remember at the time, I was feeling hot, tired, anxious from a long week of work, and I just wanted to let go of all of stress. Drink a glass of wine, eat some yummy noodles, and enjoy being out and about. I wanted to enjoy the moment and be happy. But is that real happiness? Does having a great time mean not taking care of blood sugars? All I’m really doing is hurting myself. A moment of pleasure followed by hours of blood sugar highs and lows – and emotional ones as well.
I have found some enlightenment reading Women, Food, and God in which author Geneen Roth talks about the perils of weight loss, going on diets, and never really reaching that state of pure bliss with one’s body. She explains that many of us go through life setting a goal, such as losing 10 or 20 pounds, but not allowing ourselves to ever reach it. Boy, did I ever relate to that. I’ve wanted to lose those 10 or 20 pounds since freshman year in college, and not to give too much away, but that’s been a while. And then she says it, the line that got me: Because without that goal, we’d be lost. Reaching that goal has becomes our identity.
I realized that her statement not only applies to weight loss, but it applies to all goals in life. It can apply to reaching that perfect weight and also that perfect 6.5 A1C or blood sugar reading – or how about projects around the house, creative pursuits, education and career, love, and so on.
And as Roth says, we tell ourselves that once we reach that goal, our lives will be better. We’ll be happy. I’ll be happy. This seems counterintuitive, doesn’t it? Because then, when it comes time to really making it happen, that moment of truth, I didn’t set that dual wave bolus so that my sugars will turn out great. I didn’t order the steamed veggie platter. Nor did I exercise for an hour afterward. Because perhaps a part of me thinks that if I reach my goals, well then what will I do with my life? Who will I be? I’ll feel lost, alone, without a purpose. And all I really want is to be happy. Geneen Roth explains: That person aiming for those goals, the person who will only be happy once reaching them, was never who I really am, who any of us are. The real goal, the way to live life to the fullest and thrive with diabetes, is to live life as our authentic selves through being – where you live each moment as it is whether it you are happy or sad, angry or hurt, or inspired.
Many of us try to push away what we are really feeling and sensing because we are so focused on being “happy”. Many of us, including myself, suppress our feelings through food. But by being with whatever we are feeling, whether it be good or bad, we can live more fully and more authentically – and in essence, it makes us even happier. You can bring those moments of being into as many moments of the day as possible. Feeling, sensing, tasting, smelling, touching, and listening to wherever you are physically and emotionally at every moment of every day.
Last night, I heard that soft, little voice telling me to set a dual wave bolus, but I didn’t act because that voice was drowned by the noise of my ranting thoughts. Trying to think of how I could be happier, instead of just being.
Possible link: Women, Food and God: http://geneenroth.com/