MRI-My New Friend Receptionist & Bonding Over Diabetes
AN MRI & Bonding Over D
So I FINALLY went for my MRI yesterday morning! Was I nervous? YES, but after months of being bothered with severe shoulder and neck pain on my right side, I was more than ready to get this thing over with.
I had tried to go Thursday night, but when I got the imaging place, I’d forgotten my RX (YES- TOTALLY STUPID on my part) and had to reschedule for Monday morning.
I was mad at myself for being so stupid, and drove home and went to bed.
Cut to Monday morning. I was out the door at 8:50, I’d packed my car (I was going on work appointments right after) and drove to the imaging place, parked, took a deep breath and walked through the doors.
The receptionist told me to sign in and handed me a pile of forms to fill out.
As I sat down, I turned my head and noticed that she and the other receptionist were looking and me and talking…but maybe I was just being paranoid.
I filled out the first three pages of paperwork no problem.
But the forth page threw me for a loop.
It asked me if I had an array of medical devices including, “any and all steel parts, defibulators, pacemakers and insulin pumps/ infusion sets." Not to mention breast implants, chest plate implants, chin implants - the whole implant family if you catch my drift~
I knew that I had to answer yes regarding the IP and I also knew I needed to remove it, but what about my infusion set? It was plastic parts – would I need to remove my infusion set? And if so did I have an extra set in my glove compartment?
I walked up to the Receptionist and asked her about my infusion set and she said she thought it be OK, but would check with the MRI Tech and asked me to wait at the desk.
She came back and said: Yes, your infusion set is OK, now worries. SO…How do you like being on an insulin pump?
Me: I like it fine. It’s work, but it’s worth it. As far as I’m concerned insulin pumps equal freedom and better control. The first week was rough, lots of testing to figure out my basal rates, but after that – it was a cakewalk–so to speak ;)
Receptionist: Really? That’s what people tell me. I was diagnosed t1 4 years ago and it definitely threw me for a loop – I’m on insulin pens and am really having issues with shots in general.
Just than another receptionist chimed in and said: I told you you two would have something to talk about. She loves being on the pump - just like my sister does!
Me: Who’s your Endo and have you seen a CDE?
Receptionist: I’m looking for a new Endo and haven’t seen a CDE since I was diagnosed.
Me: I have a great one-Dr. J at Jefferson. He and his CDE, Cheryl work as a team.
Turns out, receptionist # 2 went to Dr. J for her Hashimoto's Disease and her sister was Dr J’s Nurse Practitioner - Small freaking world!
I took out my Blogger card and wrote down my Endo & CDE's info; I also asked her if she’d checked out any d on-line communities such as dlife, Diabetes Daily, and Tu Diabetes.
She’d told me she’d been on-line and was covered in that department.
Me: Look, so much has changed regarding diabetes care & treatment, you need to arm yourself with knowledge including; a great Endo, a smart CDE, and diabetes communities on the web. Be thankful that you were diagnosed now, when there are so many possibilities in care & understanding of PWD’s.
Receptionist; Yeah, I’m lucky, years ago, diabetics were so restricted! But still, a lot’s been thrown at me these past four years.
Me: Yeah a lot has been thrown your way, I bet it wasn’t easy!
Receptionist: I was in total shock!
We continued to chat until the MRI Tech came out and called my name.
We said our goodbyes and I followed my new friend, MRI Tech down the hall, to a locker, where we placed my insulin pump & purse & locked them up tight. I went to a changing room and took off my bra, but kept my shirt on (great day to wear a light colored shirt Kel) and then we walked in and she started giving me instructions for the MRI.
I was told to lay flat on the MRI table/ and MRI Tech friend harnessed my shoulder into some type of strappy thing a ma bob, and placed an emergency squeeze thing in my left hand. “Squeeze this if you start to feel uncomfortable in anyway.” I was also told to keep as still as possible.
As the sliding table slid under the MRI I tried to keep calm. I mean how bad could it really be??
Answer: REALLY, REALLY NOT PLEASANT. It was constricting, uncomfortable, and coffin like. My face was about 10 inches from the top of the MRI and as I breathed I felt my breath hit my face. I tried not to move, really I did, but every once in a while, my right food would twitch.
AND IT WAS LOUD IN THERE! Even with ear plugs I could barely keep my mind on task. I felt like I was in the middle of a Jackhammer concert.
I tried singing the Alphabet song to myself (in my head) really slow. I choose the Alphabet song because I once read article about brushing your teeth. The article stated that if you sang The Happy Birthday Song slow four times while you brushed one side of your mouth, it would take about two minutes and then you could switch brushing to the other side of your mouth and start the song process all over again. That Alphabet thing lasted about 2 minutes in the MRI because I could barely hear my inner voice, let alone keep track of how many times I was singing -and breathing was really starting to become an issue.
I tried yoga breathing and was told over the loudspeaker: Kelly, could you try shallow breathing in 3 minute increments so we could get a better image. I tried and really thought I was going to pass out. But I didn’t want them to stop & have to start this hell ride all over again so I continued with the shallow breathing.
I thought about my friend Receptionist, and how an insulin pump had sparked a conversation about OUR diabetes. I spent a lot of time thinking about how her world must have been turned upside down about her diagnoses.
“WOW,” I thought- it’s never easy – no matter what age.
Loadspeaker Voice: Kelly could you continue the shallow breathing for another 3 minutes?”
Me: Uhhh, sure – I guess….
Then I thought of how scary it must have been for my friend Receptionist to learn to take needles,test, and count carbs and I wondered if “Steel Magnolia” went through her head?
I thought about how difficult it must have been when she worked out and got low for the first time.
All those diabetes firsts that I take for granted must have really rocked her world.
I mean they continue to rock mine and I've been dealing with them for years!
The voice from the loudspeaker called to me again: Kel, continue the shallow breathing, we have three or four more images to get, shouldn’t take more than 15 minutes & keep still OK?
Me: I’m trying.
Then my mind drifted to a woman I’d met last week the Virtua T2 meeting. She was petite little thing in the back row, in her early 50’s -if that. She raised her hand and said: I want get a grip on this thing, I’m scared and frustrated. I want a good life, I want to be healthy.
I said something like: We all want to be healthy. And your well on your way because your here talking about diabetes, learning about it, and owning it. It’s hard, but the fact that you’re here and willing is half the battle!
Then I started to feel light headed the MRI machine continued to pound with its jackhammer like percussion.
Finally I couldn’t think anymore, I couldn’t hear anymore, and I was really ready to squeeze the emergency thing and admit that I couldn’t deal with the coffin known as the MRI.
And then it stopped, and everything was much quieter, the machine hummed instead of pounding and I began to slide towards the light.
The MRI Tech helped me up and took my earplugs. I apologized for my crazy right foot, thanked the all the techs, grabbed my locker key and went to my locker. I was mess.
Crazy hair, no bra, no pump, and my head felt funny. I grabbed my stuff, changed in the bathroom, got myself together and went out to the reception area.
I walked up to my friend Receptionist and said: It was nice to meet you! Go see Dr J and definitely look into getting the pump.
Receptionist: It was nice to meet you to! I’m really considering the pump. Every time I drive home from work I pass Dairy Queen and literally can’t even look in that direction.
Me: Your doing GREAT. Nothing is off limits with diabetes- you just have to look at things a different way and the pump really helps. However, almost everything is off limits in the MRI tube- I’ll take D any day.
Thanks To The DOC, She's In DC!
Back on May 31st, a mother of a teenager with diabetes wrote me seeking advice because her type 1 daughter had been denied the chance to go on her class trip to Washington, DC. You can read that post, HERE.
And as always, the Diabetes On-Line Community was so supportive and helpful - both on-line & off!
Many of you have asked me what the outcome was. I've decided to let the D-Momma tell you the outcome herself!! ENJOY!
WAY TO GO, DOC - YOU ROCK!!
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Dear DOC:
My daughter is in DC and having a blast! She's has been there since Monday and has not had one single problem with her diabetes.
This is so AWESOME because two other diabetics have signed up for the trip for next year and with my daughter's successful trip, they won't have to fight with the school just to participate!
I found out just before she left that she is the first diabetic to attend from her school.
I wonder how many others were not allowed before we came along.
I don't think I would have been was able to keep my cool and handle things so well without the support I found here. Kelly, her friend Tom the Advocate, and all of the parents in the DOC are the reasons why my daughter was able to go!
BIG THANKS to all of you who showed us support on Kelly's blog!
Hi, High!
Hi, High Blood Sugars:
How are you?
I’m fine, except for the fact that you’ve been shadowing me since the weekend thanks to a sinus/ ear infection.
While I appreciate the fact that you find me stunning and fascinating – which, I am (for the most part) I’m over you!
SERIOUSLY – STOP STALKING ME.
I’m popping the antibiotics and surrendered to the temporary bolus, so you need to leave!
I don’t like the slug like feelings that accompany you, the racehorse pee fests, or the extreme thirst.
I don’t like going through an insane amount of test strips and correction boluses in order to keep you in check.
So listen up, here’s the deal.
The temporary bolus has now been maxed out to 24 hours instead of the 10 I did yesterday and you have already started your descent towards normal.
I’m going on with my day, and plan to accomplish many things.
And if I see that your starting heading in the direction of the Mount Fuji’s summit, I’ll kick you back down to sea level ASAP and leave you for shark chum - because that's how I roll~
Glad we had this talk.
Kelly K
NAVI, Vaccines (and the BBC). The battleground for future health care?
The NAVI plan to spend £billions on vaccination in the poorest countries of the world is perhaps one of the most remarkable triumphs of hope of experience there has ever been! Vaccinations have never saved lives, and never will. This ‘Child Health Safety’ link goes over the evidence for this statement.
Yet the British Government, and Bill Gates, seem determined to divert aid to the 3rd world in order to benefit Big Pharma companies. As the article states, irrefutably, is that;
“the main advances in combating disease over 200 years have been better food and drinking water”.
Yet the mainstream media is always there, standing alongside Big Pharma, seeking to hide this fact from our attention. In doing so, I particularly wish to highlight the stance of the BBC, which certainly never tells the whole story about drugs and vaccines. They certainly did not do so in the discussion they organised on Newsnight a couple of nights ago. They seem to be ready to jump on to the Big Pharma bandwagon, to help them sell their drugs and vaccines, whenever they issue a press release - such as this one, which is typical of their uncritical and unquestioning approach.
Clearly, the BBC, in common with the rest of our mainstream media, do not want us to know that vaccines are dangerous, and sometimes lethal! For instance, here are several recent news releases.
... concerning infant death and vaccination
... the rise in childhood allergies being linked to vaccinations.
... that Hepatitis B vaccines is linked to Infant Death Syndrome, and MS
... that 1 in 6 children affected by vaccines
... that conventional medical professionals are aware that vaccinations are dangerous.
... that Narcolepsy is on the rise, and directly associated with vaccines
One would believe that these are all important issues of public health. Yet the only thing these news releases have in common is that the BBC, nor indeed anyone else in the mainstream media, has bothered to tell you about them!
The BBC is one of the biggest culprits. They will not inform the public about the risks, or seek to discuss the relative advantages and disadvantages of vaccination. This link discusses benefits of protecting children from measles (a relatively minor, short term illness in the modern world) with the risk of getting Autism (a very serious lifetime sentence).
Moreover, the mainstream media, including the BBC, don’t want us to know that vaccinations are largely ineffective (or do I mean useless?)
...that many outbreaks of disease for which people have been vaccinated happens to people who have actually been vaccinated!
... that Flu vaccine does not work
... that Pneumonia vaccine does not work (although thanks to the Daily Mail for publishing this piece of new)
Nor does the BBC, or the rest of our Media, tell us about, or even discuss the issue, of how expensive these dangerous and useless vaccination programmes are:
... for instance, the cost of the HPV, or Cervarix vaccine, which has little or no benefit
Dr. Diane M. Harper, a lead researcher in the development of the human papilloma virus vaccine, has apparently said that giving the drug to 11-year-old girls "is a great big public health experiment." She said that vaccinating little girls now is not going to protect them later since it can take a decade or more to even manifest itself as dysplasia, the HPVs against which this vaccine works may infect a little girl at the age she needs the vaccine most - meaning she will have to have a booster at the right point in time or she will not be protected. And, remember, it won't work at all if she was positive for the virus when she was inoculated in the first place.
Nor does our mainstream media tell us that drug companies have been given immunity against prosecution, in one form or another, in many parts of the world; for them, it is a win-win situation. They profit from selling the drug/vaccine, and can do so without comeback.
In contrast, for the taxpayer, it is lose-lose. They pay for the drug/vaccine - then have to compensate those who have been damaged - if, that is, they can prove they have been damaged by drugs and vaccines.
... or that that drug companies refuse to pay for the damage they cause with their drugs and vaccines.
Even when drug company insider breaks rank, and tells us what is happening, the mainstream media does not tell us.
But the fact that there have been massive compensation payouts to the families of people who have died, or been severely damaged by vaccines, proves that drugs and vaccines are NOT safe. And this, despite the fact that Governments, National Health Services, the BBC and the mainstream media, repeatedly, persistently and without any apparent remorse, continue to tell us that vaccinations are entirely safe!
Undoubtedly, these are all matters of public interest and concern. The refusal of the BBC, and the mainstream media, to discuss them and to inform the public of the dangers, is a dereliction of their responsibility - especially for a public service broadcaster. The fact is that the public remains largely uninformed, completely ignorant of what is happening to them, and what is being offered to them, in the name of health.
The relationship between Big Pharma and national governments is a commercial one, in which the drug companies have control, especially in the US and UK, where they contribute significantly to employment and industrial investment.
The relationship between Big Pharma and the mainstream media is also a commercial one, in which the drug companies have control through their advertising revenues.
However, I am not entirely clear about the agenda of the BBC, a public service broadcaster, financed by the virtually compulsory licence fee. But in their relationship with Big Pharma, and conventional medicine generally, the drug companies are very definitely and clearly in control of what they tell us about our health.
