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Lostness And Finding Along The Shore

Incoming tide, Ventnor, NJ
Photo by Kathleen Boyce - Ventnor/Beijing


I’m no Olympic swimmer, I don't have the talent or the skills and I get bored swimming pool laps. But in the ocean or bay, I can more than hold my own. I am at home in those living bodies of water, and feel graceful there.
This weekend I spent a lot of time at the beach. The weather was perfect, not to hot, not to cold, and the water was the warmest it’s been all season. The waves were breaking due to the hurricane off the Florida coast.
I believe we are ¾’s salt water for a reason. We are part of the ocean. Not only chemically, but our movements mimic the rhythm of the waves at certain times and moments of, and in, our lives. To quote a lyric whose singer’s name & song title escapes me, "I am the ocean.”

I grew up, 3 blocks from the beach and could swim in the ocean from the time I was knee high. I vividly remember my brother (who was a lifeguard) taking me out in the surfboat (lifeguard boat) and diving in. He tread water and convinced me to dive in while his partner was at the oars. I did – and remember doggie paddling towards him. He kept encouraging me that I could do it. I didn’t care that I was out over my head - I didn’t care that I was out over his head either. Every day we went out early in the morning or after 5pm, and every day I swam further.

I learned how to float on my back, how to do the backstroke, and freestyle.
Soon, I didn’t need (or want) anyone’s help.
As a child, I’d swim in the ocean for hours, until my teeth were chattering and my lips turned blue from the cold. I’d swim out way over my head and then turn around and swim towards shore.
I’d body surf the waves with my father, trying always to make him proud. The ocean was the one place where my father connected to everyone of his children.

My father loved the Atlantic Ocean. He was born in Atlantic City and used to dive off the fishing piers & the Trenton Ave bay bulkhead. He’d been in over 30 countries in WWII, but was a “Jersey Beach Boy” through and through. He never wanted to leave South Jersey when he returned after the war. As kids, he’d always tell us, “See this beach right here? This is the BEST beach in the world! I’ve been in over 30 countries, and it doesn’t get better than this!”


When he died, I went to the beach the night before his funeral and the sky was this amazing swirl of gray and yellow – like a Mother of Pearl shell. I filled a tiny glass Skippy jar with sand and screwed the lid on tight. On the morning of his viewing, I open the lid of the jar, sprinkled a hand full of sand under his shoes, and
placed the jar in the foot of his coffin.
I wanted to make sure that he'd always have sand at his feet and under them.

I like to the think that heaven is all things to all people. For me, heaven is an ocean in the sky. The waves are always good, the riptides are never strong, the spindrifts are always bubbling, and everyone I love who has ever died is either on the shoreline or in the water, happy and in excellent health - having a blast.

The ocean makes me feel peaceful and at home. I respect the water; I know how dangerous and powerful it is. My cousin Mark was a teacher, and he ( and 11 others) drowned in a canoeing accident while trying to save one of his students on Lake Timiskaming in 1978 - It was a national tragedy in Canada.

Not only was that the year I was diagnosed, that was the year I learned that water could take the life of some one I loved, no matter how nice or strong they were.


Still.., I loved being in the water.
When I was fearless child, I got caught in a riptide, and had absolutely no ideal that I was in trouble. One of the lifeguards (who was a friend of both my brothers) swam out and offered to race me to shore, as long as I followed his path. Side by side, swimming parallel to the shore until the action of the waves pushed us back towards beach. I never knew that I was in any sort of danger. 25 years later I ran into him at Malooney's Bar and he told me the story. “Kel, you were a fish – you had no ideal, and you weren’t scared. I didn’t save you, I just guided you.”

Sunday-early evening, after my friends left the beach, I sat there and stared at the ocean for a good half hour with a lump in my throat. I stood up; took off my insulin pump, placed it in the cooler, put the cooler in my knapsack, and walked towards the waves. I felt so free, I felt at home…and I felt sad.

I knew I couldn’t stay in for long. I’d already disconnected my pump several times that day. Earlier that afternoon, I'd gone swimming for almost an hour. Before that, I’d taken my friends daughter for a swim and we played in the waves for a good 20 minutes. I was pushing my luck and I knew it.

Still, I continue to plunge myself full force in the waves, Diving under them, arching up towards the surface, or catching them just as they were ready to crest towards shore, surfing them with my body.
It was time to go and I had to get out, I didn't want to go. I took my last dive under a huge white cap, and waited as long as I could before I surfaced.

As walked out of the water, I had tears in my eyes.
It was as if whatever sadness I'd ever felt regarding diabetes had walked in the water with me, and I couldn't wash it off. It was if the sadness still shadowed me as I walked towards the dry sand.

The place that I felt most free was also the place where my freedom was most limited.

Scott called it, “that feeling of lostness.” I not only felt lost, but I also felt a tremendous sense of loss, in a place where I normally went to find myself.
Why was I feeling this way? Was it reading Birdie's thoughts on her "not so new normal?"Hearing about Bernard's friend? Was it hormonal? Was the churning of the waves making my thoughts churn as well. Was I just fucking nuts?

Most likely it was a combo of all the above.

It happened, I recognized it, and eventually, I moved on from it...I even managed to trip going up the boardwalk steps, which caused me to loose my balance just a tad, drop all my stuff to grab on to the railing, and cause a 5-person pile up on the steps.
“HOW GRACEFUL AM I?!...I totally meant to do that...really, I did.”
I said to the people behind me, and we laughed.

So yes, I had even been able to find the funny… ;0

Dear Society

Dear Society

Hey dBlogville: Happy Tuesday! There's a new feature on Tuesdays at Diabetesalicousness- called "Letters to Diabetes."

I’ve written several letters to and about Diabetes on this blog-and thought, why not do it weekly? Some days it will be to Diabetes- other days (like today) it will be a letter to a person, place, or thing regarding Diabetes - Let me know what you think~


Dear Society-

We need to set up a few Diabetes ground rules that will make all involved get along a little better.

First off: If your going to blame me as a person with Diabetes for my disease- get your freaking facts right!

Learn the difference between Type 1 or type 2, the diseases true causes and effects- and PLEASE realize that blaming the patient will not diminish the disease or its effects- but it will make me as a PWD, want to verbally annihilate you with every fiber of my bein, both in public and in private. Trust me, you don't want me to go there. I've had years of practice and am quite good at going for the jugular.

Remember to keep in mind that there are no bad sugars- only challenging carbs.

Consider the fact that nothing is off limits, as long as I test and bolus accordingly.

If I decide to indulge in a cupcake- don’t say, “I’m cheating,”- because I’m not.

Never ask me “are you allowed to eat that?” if you don’t want to hear my explanation on carb counting and blousing.

Stop telling me that if I just gave up “all things white,” I could be off the dreaded insulin in a month. You know nothing of my disease or me.

Do ask questions in a way that won’t offend.

For example-the following question is not only offensive BUT it’s just makes the person who asks it sound SO STUPID:

Kelly is it because of your love of Pixie Sticks & Sprite that you became a diabetic at the age of 8?

Really…REALLY??

A better choice would be:

Kelly, I’m not really sure how one develops diabetes. This may sound silly, but IS candy a factor in developing diabetes?

As a person with diabetes, please don’t make a comment on my blood sugar number.

If the number is high- don’t ask: WHAT THE HELL DID YOU DO?

A better, and much more appreciated response is: What DO you (or WE, if your feeling all proactive and such) do to fix it?

Remember- there are no bad blood sugar numbers, because every number acts a map to tell us where our body IS- and where we need to GO from there. For those of you who can’t read maps- I completely sympathize. Simply think of blood sugar testing as a Diabetes GPS tracking device~

PWD’s (Person or people with diabetes) normally will answer any and all questions that you as non-PWD have- we’re good that way.

BUT ENOUGH WITH BLAMING US FOR OUR DISEASE- we have enough guilt on our own, regarding a multitude of diabetes related issues – we don’t need yours.

Your friend and fellow human,

Kelly Kunik

A PWD since the age of 8

Way Back Wednesday: Freckled Finger Tips REVISITED


This poem was originally posted 1/8/08 - way back when Diabetesaliciousness was only a few months old. Not to many folks were reading the blog and I was learning all the wonders of the Diabetes On-Line Community. I'm still learning all the wonders of our community and I'm so grateful for that. Anywho, I thought I'd reintroduce you to Freckled Finger Tips - Hope you like it!


My fingers tips are freckled with dots.
Dots that rest on callouses,
Calluses caused by continually pricking them with a lance
Which pierces my finger tips for a blood drop.
A blood drop that is placed on a strip,
A strip that is placed in a machine,
A machine that's a indeed quick study.
5 seconds later a number appears.
If the number is high, I feel tired and guilty
and bolus accordingly.
If the number is low
I already know before it appears.
I shake, sweat, and feel light headed
My appetite is insatiable.
Quickly I grab the juice box
And I try my best to remember the rule;
15 carbs at a time to treat a low blood sugar - yeah right!
If it's in the golden range of Blood Sugar Nirvana
I'm proud and relieved -
Until the cycle starts all over again.
IT NEVER ENDS.
I find test strips everywhere
In places they were never meant to be.
The type 3's in my life yell at me regarding my test strip trail
I will never be a hand model...But that's OK....

Life is sweet and I go with the flow~


Photos courtesy of my iPhone

Guest Post: 6 Months Into Life With Diabetes - It's About Nicole!

Today's Guest host is Cheryl Kinnunen. I've never met Cheryl in real life, but she's my friend just the same.
We connected through her fantastical daughter Nicole. I met Nic 4 years ago when I was a speaker at DESA (Diabetes Exercise & Sports Association) nat'l meeting in Colorado Springs.
Nicole was there with her dad Vic, who's quite the the Athlete/dad/type 1. We hithit it off right of the bat - And spent a lot of time together that weekend - And we've kept in touch ever since!
Though I'll admit, I still haven't quite forgiven Nic for continually making fun of me for being afraid to jump off the high-dive. OK, I was running REALLY high blood sugars the whole time I was there ( I had no idea back than that high altitudes requires us to almost double our pump basal rates,) and just couldn't do it!


Nic still won't let me live it down!


Anyway, when Nic was diagnosed 6 months ago, Cheryl and I became friends and I'm so glad we are - She's an amazing D mom & friend!


Last month I asked Cheryl if she'd like to guest post. She marinated on it for a bit and then agreed.
I think you'll be pleased with the results. Take it away Cheryl !
######




Nic & Cheryl
First, let me say that I am beyond excited to be asked to post here on Kelly’s blog…after all, she is the Queen of Awesomeness!
When Kelly asked me about posting, I started thinking about our journey over the last 6 months since my daughter Nicole’s T1 diagnosis and how it has affected us. This is a diabetes blog after all, right?? But then Nicole stopped me in my tracks… By writing a paper for school about herself and science (diabetes, insulin, pumps—seems like a no-brainer huh?) she asked me, “Why does it always have to be about diabetes?” And you know what? She’s right!
So while this may be a little about diabetes…it’s really about my daughter.
Nicole will be 12 in a couple weeks. She is smart and beautiful—on the inside and out. She is a voracious reader…all she wanted for her birthday was a blue Animas Ping insulin pump and her own Kindle…she is getting both.
She is funny, sarcastic, and sometimes argumentative. She writes her own songs. She plays lacrosse. She is in Junior High and her room is a disaster. She always wants to wear more makeup than I will let her and she loves to use lots of emoticons when texting.
When she grows up, she wants to work for the FBI and profile serial killers with the BAU.
She is a good friend. She still teases Kelly about not jumping off the high dive four years ago.


Back then, Nicole was 7 and jumped of the high dive herself - NUMEROUS TIMES.
Oh, and, by the way, she has Type 1 diabetes. . She is an expert carb counter and has done all of her own pricks and injections since day 1. She saw the look on my face…that day in the doctor’s office…and asked me what the BG was. “504” She cried quietly… for a minute or two, while I held her in my arms…and she has never looked back.
I love her with every fiber of my being. She is my daughter and my hero and a person with diabetes. And I am so proud to be her mom!